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Has Anyone In The Group Been Diagnosed With Sacroiliac Joints Pain And Inflammation In The Sacroiliac Joints?

A MyFibroTeam Member asked a question 💭
Saint Matthews, SC

If you have Sacroiliac joint pain and inflammation, have you been diagnosed with both Fibromyalgia and Ankylosing Spondylitis?

April 25, 2023
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A MyFibroTeam Member

@A MyFibroTeam Member, hi Linda, I was first diagnosed with fibromyalgia. I kept having severe neck, shoulder, back and buttocks pain. Also severe hip bursitis. MRI showed bilateral sacroiliitis, inflammation in SI joints. My rheumatologist diagnosed Ankylosing Spondylitis. I take Humira, celebrex, Cymbalta and sulfasalazine. My pain has improved greatly. I apply heat when in a painful flare. If you don't have a rheumatologist, add one to your medical team. I pray you get pain relief.

April 25, 2023
A MyFibroTeam Member

I just started dealing with this problem. My insurance denied paying for the cortisone shot. Now in the next phase of fighting insurance. Not another fibromyalgia related thing! Never ends. I too have a terrible time sleeping as no position is comfortable and could not tolerate the physical therapy that I tried. I was crippled for days after a PT session, so I discontinued that.

June 7, 2023
A MyFibroTeam Member

I suffer from burning pain in my lower back and hips, sometimes extending down my legs. Makes any activity very difficult but also seriously impacts my sleep. I have to keep changing positions to try and relieve the pain. So sleeping is a challenge.
So far I haven’t found anything to help. My rheumatologist says I have severe arthritis in my hip and need a hip replacement but my GP disagrees. He says it isn’t that bad and that the fibromyalgia is making the pain worse. Does this make any sense?

May 31, 2023
A MyFibroTeam Member

Yes unfortunately. Had epidural injections helped alot but then had heart attack and he says no more injections

April 26, 2023
A MyFibroTeam Member

The wait list for pain management in my area is a year to a year and half. I'd like to get injections for my back pain

April 25, 2023

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