I took it for almost three months, never hit the sweet spot. It actually made some problem areas worse. It also adversely affected my mood. Titrating the dose upwards can take a long time and you can't take any narcotics with it. Also you may end up paying out of pocket because it usually requires a compounding pharmacy. Since we are all different, it may work for you. I certainly don't regret trying it. Good luck. 💜

I tried it, and it only made me worse. I was disappointed, as I had hopes for it. I had a bad fainting spell with it, and stopped breathing briefly. Scared the crap out of my husband and son! All tests after were normal. I tend to be sensitive to meds, and this was at 3mg. Recently I started a natural supplement called PEA 400! A game changer! It has certainly reduced my pain!!!

Agreed... I've been on it since 2022 and it works great for MY fibro pain w/o side effects. But I sometimes wish I had opioids for other pain.
Also, it takes awhile to start working.
Cost wise: I get 50 mg tablets and mix w/50 ml of water; measure out 4.5 ml a day. Very cheap that way but a bit more effort 😉 I think it's probably worth a try. ❤️
Deb

It works for some and not others, like many medications 🩷Victoria

@A MyFibroTeam Member
Wow, sorry you had such a a bad experience with LDN!
I'd never heard of PEA 400 so I just looked it up. It sounds very interesting, and like it might improve energy? That makes it worth checking out, for sure. Thanks for posting about it! Hugs,
(Another) Deb 😘

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