Thank you so much for your feedback :)

@A MyFibroTeam Member,
I hope you will have a diagnosis soon. The rheumatologist are trained in most rheumatological conditions/diseases so I tend to trust the recommendations of my rheumatologist. But I also do my own research. The Arthritis Foundation is one source of information about fibromyalgia.

My understanding is that there are no blood test to diagnose fibromyalgia but the blood test and X-rays can help the doctor rule out other conditions.

I was diagnosed with fibro in 2000 and my rheumatologist suggested I try a diet lower in sugar and caffeine, stay hydrated, try getting some exercise even though I have extreme fatigue. I couldn’t exercise for a long time because I had to learn how to pace myself in my daily routine. A physical therapist can offer suggestions on exercise.
For anxiety I found talking with a therapist/counselor helpful in learning how to manage the anxiety.
I hope you get the help you need🤗🌹

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A MyFibro...

Me too. It’s a real struggle. I used to be really active. I struggle with depression now too- partly because of what I can’t do anymore…

Hey, i hope you are having a better day today.
I dont have answers as such, as im still new to fibro as well. But you are not alone with the anxiety and worrying it could be something else.
It tends to be worse at nighttime when my daughters asleep and im sat alone quiet, that the anxiety and worrying comes. When i have time to actually sit and think. Ive had to ban myself from googling my symptoms because that makes things even worse 😅
Its a good sign that all your tests have came back normal, thats only really the way they can diagnose, by ruling everything else out first.
The drs must of tested me for cancer numerous times, along with so many other diseases. Its so worrying waiting for the results but its a relief when it comes back normal.
After reading loads of other peoples posts it seems so many others have also been told they have cancer, to then be told " actually its not cancer its fibromyalgia ".
The rollercoaster of worry and emotions is so overwhelming but the fact you have a rheumatologist on your case is really reassuring. They are the specialists to diagnose.
Im glad you have a specialist on your side.
It took me over 8 years of constant pestering and pushing drs until i was finally diagnosed. Now looking back at all the symptoms and complaints i made over the years, all of them scream fibro.
Maybe write some notes to try and log where your pain is, when it comes on, any food/ drink you had that day, what stresses you experienced that could of triggered the pain. You'll probably find there is a slight pattern and youll learn what to avoid.
I had to cut out caffeine suddenly as the anxiety it gave me was too much. Even drinks with too much sugar causes my brain to go all fuzzy and brings on migraines.
Once you start becoming aware its a blessing and a curse 😅😅 but a blessing because now your on the right path to managing and finding ways to make yourself better.
Sorry to waffle, just wanted you to know you are not alone. Although the pains we experience are different, the journeys to a diagnoses tend to be the same.
Wish you all the best and hope you find reassurance soon 💫 💗

Oh I definitely understand researching and diagnosing yourself. I think I have my PhD in Google LOL. I love to read about different things as well, you never know when you might read something helpful. You might find something you can ask the doc about. I've done that. I saw a neurologist and when they talked about how by the arthritis was in my neck I was like.... "Now just regular arthritis or giant cell or something odd." just regular arthritis for me on top of other things. So definitely keep reading and keep asking questions.