To be honest

Sometimes people suck, Bobbii.

Sad to say.

I know I do pretty often even though I have super sweet friends on here who'd argue that fact but I fail in lots of places

Sometimes humans fail and they don't mean to. Some is something they can control some is not.

But sometimes fam is just fam
Just becuz by blood doesn't mean they aren't jerkfaces
And Sometimes your biggest dam is not by blood at all

Sometimes ppl we thought were friends to the end- arent

Sometimes family members are legit asshats

Sometimes we will fail
And if anyone in our lives accept that- it's a blessing
Sometimes that means we should strive to turn it in to one anyhow

Were in a crappy land were navigating

Filled with pain mostly

Uncertainty for sure

Filled with feeling like we've left loved ones down and depression and wondering if the life we live is doing anyone in our lives any good and many feelings down that rabbit hole.

Many , including bosses and especially most annoyingly doctors, will tell us were just crazy. All in our heads. Drama Queens or Kings or however you identify.

Fibro is barely recognized by the med community still to this day. My own pain clinic , whom I've been going 9ish yrs now and have had to convince many times- didn't have it in their computer systems.

Your pain matters be sure.

It doesn't care if you're a parent or grandparent, working or retired, if you knew 2 decades ago or finally got a doc to listen last couple of months. Like most diseases it does sap you of your energy, will to live, sleep, ability to handle pain while docs accuse you of drug seeking when all you wanted eas an hour or 2 relief- and oh so much more

Bsck to point at hand:
Sometimes family just straight up sucks. They will mistreat you like a stranger walking in

Sometimes friends do too suck.

Sometimes ppl do abuse the medical system and claim shit they don't have for variety of reasons. Even ppl on this here support group actually.

It skews many things. Including the care we deserve short and long term

Many of us also have other health conditions too. Males it harder on the med world to be fair to them

I can attest once you can and able to, to treat this like any other group in person or online, there are some super crazy wonderful ppl on here.

(I get how exhausting it seems.
I joined cuz my wits end too to put it mildly)

You may find some inspiration, headaches too, tips and thinking some ppl are off their rocker- me included lol

I will say there is quite a numerous amount of caring and thoughtful people on here. They out weigh any drama or bad or lack of solutions were all have been trying to seek.

I hate long posts and just did one so imma now leave lol

In short:

WELCOME

That’s a hard one ,if they don’t live with you. Even those that live with us ,have a hard time with it. One minute we are good, another minute we are in bed. One minute we’re happy, one minute we’re grumpy. It’s very confusing to others, and ourselves. This is a strange condition to have . Some people have had luck, with finding something online that’s printed and having the person read it. Hugs Victoria

Honestly, fibromyalgia is such a weird syndrome that it is extremely difficult to wrap our brain around it. Nothing is wrong, nothing is there and still hurts so so much. So complex. Mimics nearly all the severe illnesses under the sun without diagnostic findings. My husband could never understand what is going on with me, thought that I just exaggerating my sensitivities. One day we had a dinner with a couple and they were complaining about the horrific health experiences the wife had. They sad nobody believes them, the lady had so much pain that she was taking opiates and sat in a wheel chair. Without any diagnosis (nothing is wrong with her according to her doctors, after all thorough medical work ups, CTs, MRIs etc. She also had light sensitivity, noise sensitivity, the dinner crowd and noise really bothered her. She even massaged her arms and was super uncomfortable visibly. She tried really hard to pull through the night. She behaved so much like me, that my husband right there, right then understood and accepted my condition. Ever since he never doubts me.

I feel like I have to convince people as well it really sucks because I want to do stuff I just know that if I do I will suffer later and they won't see that part.

Just echoing Ms Lauren's words. Hugs