Connect with others who understand.

Sign up Log in
Resources
About MyFibroTeam
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Lonely Illness

A MyFibroTeam Member asked a question 💭
Lexington, KY

My family says when I start talking about my fibromyalgia that it is all about me to make me shut up!! I feel like crying the way my family, friends,and even the medical field treàts me. Isn't it enough that you have to live with this illness? Sad to say though this is when you actually find out who really cares and loves you. I feel so alone.

July 6, 2024
View reactions
A MyFibroTeam Member

I understand what people are saying but I am so disappointed in the reaction of people towards those with fibro. The lack of interest from close family and friends I think is harsh. The illness is the prominent thing in our lives. I can understand people not wanting constant repetition. I listen to the detail of other people’s lives with interest. Some people only talk about their employment, their children, their homes, sport, their forthcoming wedding, babies, I have to look at holiday pictures I could go on. I have no interest in sport but find out snippets from Google to join in conversations when my brother in laws visit. I understand what your saying Anne and why, but I think it is sad we have to do this. Many old people have little in their lives and talk about mundane things like shopping, should they be ignored? The way we are treated is a reflection of how insular people in general are, and this is sad. Millions of lonely people because a neighbour won’t look in listen and talk. Viva the revolution.

July 6, 2024 (edited)
A MyFibroTeam Member

This is for All of us here🌷💜🌷…We give each other strength😊🌷🌷💜🌷🌷…..

July 23, 2024
A MyFibroTeam Member
July 6, 2024
A MyFibroTeam Member

I like what @A MyFibroTeam Member said. They might be buttheads 😝

But seriously, yes. It’s a lonely illness. I think it would be easier if it was more visible somehow, like if it made our skin turn bright green or something, so everyone could *see* what’s going on. And who can just zip it when they’re in constant pain? Not me, for sure.

I do understand how constant talk about the same things can get boring or annoying, but I wish people would cut us more slack. We have an awful lot on our plates!

July 6, 2024
A MyFibroTeam Member

Nice one Donna. Tell them to f———k off.

July 7, 2024

Related content

View All

How Do Others Cope With Loneliness?

A MyFibroTeam Member asked a question 💭
Birmingham, UK

Feeling Dismissed Or Less Important Than Others With "worse" Conditions?

A MyFibroTeam Member asked a question 💭
London, UK

Does This Illness Get Worse With Old Age?

A MyFibroTeam Member asked a question 💭
Lincolnshire, IL

Already a Member? Log in