I understand what people are saying but I am so disappointed in the reaction of people towards those with fibro. The lack of interest from close family and friends I think is harsh. The illness is the prominent thing in our lives. I can understand people not wanting constant repetition. I listen to the detail of other people’s lives with interest. Some people only talk about their employment, their children, their homes, sport, their forthcoming wedding, babies, I have to look at holiday pictures I could go on. I have no interest in sport but find out snippets from Google to join in conversations when my brother in laws visit. I understand what your saying Anne and why, but I think it is sad we have to do this. Many old people have little in their lives and talk about mundane things like shopping, should they be ignored? The way we are treated is a reflection of how insular people in general are, and this is sad. Millions of lonely people because a neighbour won’t look in listen and talk. Viva the revolution.

Yep Cherokee, It is definitely a lonely disease !! The different symptoms seem to cause us to isolate!! People, including friends and family, do NOT always understand!! Either we can put up with these people, or in some cases, (like my sister in the medical field that told my whole family and there was NO SUCH thing as Fibro, and I needed to be in a psych ward!!), we need to just drop them from our lives permanently!!!!! Their attitudes are their fault - not ours!!! Life has to be lived pretty much solo with fibro. One has to realize the special talents one has and feel proud, enjoy doing things they love, be glad of no interruptions, enjoy the quiet, slow down, reach out to others that understand, not complain to those that don't understand, wait for "good days" to talk to some people, and realize good days come after bad days!! Remember that you are all still special, interesting, and accomplished people in your own right, and no one can take that from you!!! You are NOT "LESS BECAUSE YOU HAVE FIBROMYALGIA" - different perhaps, but not less!!!!!! We are different than we were before as most of us were high energy, go to people. We have changed, but everyone changes to some extend and they age, and we need to accept who we are now and change our lifestyles and our perceptions of what our lives can be like!! We need to be the best we can be with our restrictions, and look to what we CAN do!!!!!!

I find it hard not to wish some people who speak out against Fibro could have our symptoms just for ONE MONTH!!!!!!!!!!!!!!!! I think they would be complaining loud and clear!!!!!!! I also know they would think "their symptoms were different, and SO MUCH WORSE than anyone elses!!!" Sometimes I am crabby!!!😉

Old Sue

This is for All of us here🌷💜🌷…We give each other strength😊🌷🌷💜🌷🌷…..

I like what @A MyFibroTeam Member said. They might be buttheads 😝

But seriously, yes. It’s a lonely illness. I think it would be easier if it was more visible somehow, like if it made our skin turn bright green or something, so everyone could *see* what’s going on. And who can just zip it when they’re in constant pain? Not me, for sure.

I do understand how constant talk about the same things can get boring or annoying, but I wish people would cut us more slack. We have an awful lot on our plates!

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