I just got my prescription for LDN, but haven't started it yet. I can keep you posted.

Everyone responds differently to it Steve. Only way to know if it’s right for you, is to try it.

I was just talking with someone on the Stuff That Works site about this. I have seen a lot on LDN on that site but I don’t know anyone personally taking it. I don’t know anyone personally with fibromyalgia to begin with. Anyway, the person I was speaking with said it takes about 6 months to really have an effect and that you take it at such a low dose as to not get addicted. (1mg daily- increasing to 3mg after a few years). I feel like it’s worth it to try, I want to try because the FDA approved drug for fibromyalgia has so many side effects and the rule of thumb by doctors is to just keep increasing the dose if you’re not having any positive effects which make it harder to get off. My pharmacist confirmed this. I would say the most challenging thing is to get our doctors to prescribe LDN in the first place as it’s not an FDA approved treatment (which I don’t have much stock in that anyway) so the doctors are unfamiliar with prescribing it for fibromyalgia. If you have the opportunity to try it, if it was me, I would. I keep hearing positive things about it. Just know it takes many months before you notice a difference.

I had a three month, very expensive trial with titration up. Never reached a sweet spot, in fact, made the Fibro worse, but it was worth a try. Going through a compound pharmacy was a bear. You're better off having your primary physician write for a higher dose, then titrate it yourself by pill splitting and adding H2O to turn it into a solution to save $$. Good luck. 💜

Yes. I only knew it helped when I took a break from it for a couple months. I have been on LDN for 3 years.