Connect with others who understand.

Sign up Log in
Resources
About MyFibroTeam
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "the skin removal is too expensive and way the time to diagnose the disease is so long" in Q&A. To see all results and access other features, sign up for free.

Is Cannibus Helping Your Fibromyalgia Symptoms?

A MyFibroTeam Member asked a question 💭
Grayslake, IL

Illinois is one of our states that has legalized medical marijuana use for 39 illnesses including severe Fibromyalgia. I am asking my fellow flat landers and other legalized states if it has helped relieve your fibromyalgia pain and other symptoms. The more specific you be I'd very much appreciate it.

•
View reactions
A MyFibroTeam Member

Sometimes I will eat gummies with thx to help my body relax and sleep. Not often but sometimes. It helps some

Office Work And Arm Pain / Fatigue

A MyFibroTeam Member asked a question 💭
Deltona, FL

I work at a desk about 8-9 hours daily. By the days' end, my left shoulder is nearly jacked up to my neck! I have a hard knot where my neck meets my shoulder and this causes radiating pain and arm fatigue. Anyone else suffering from "desk syndtome"?

•
View reactions
A MyFibroTeam Member

I have to set my alarm and make myself get up every hour or so and take a break and walk as much as I can. This helped me tremendously just to get up and move but when we are busy it is hard… read more

Solutions For Burning Mouth? TMJ?

A MyFibroTeam Member asked a question 💭
Santa Ana, CA

I know this question got asked over a year ago, but I just want to re-flag it. Anyone else experience burning mouth pain from Fibro? Physical therapy has helped me a decent amount (by jumpstarting the nerves with a machine called an "Acuscope") but I am curious what others have done. I've had it for 7 months now and it is the worst pain I've ever felt. I don't take medications other than supplements so I know it's not a side effect. Any help would be appreciated!

•
View reactions
A MyFibroTeam Member

@A MyFibroTeam Member the only thing that has helped me is "body scan" meditation focusing only on the mouth. it doesn't make the pain go away but it makes the area that is in pain smaller/shrinks the… read more

Is There A Particular Style Of Yoga That Has Helped Anyone Here?

A MyFibroTeam Member asked a question 💭
Marlborough, MA

I need a stretching type class because I'm so bad at doing things to help my situation at home. My thigh muscles are much tighter than any others and it causes my knee caps to pull up. I have trouble with lounges and various other positions but when I stretch it helps.

•
View reactions
A MyFibroTeam Member

What is hot pod yoga

What Funny Things Have You Said With Fatigue?

A MyFibroTeam Member asked a question 💭
Peterhead, UK

Has anyone said such funny things when fatigue has hit you to family or friends . This one is funny will give you all a giggle my mum asked me what I was having for pudding one Sunday I said oh mum I've brought with me my rice pudding and I'm gonna eat my pants with that I didn't even know what I said until my mum burst out in laughter she says to me kez I hope your not going to eat your pants I goes what I then laughed then said omg mum I was meant to say I'll eat my pears with that haha was a… read more

•
View reactions
A MyFibroTeam Member

Whilst helping my niece cook dinner one evening I chopped and peeled a bunch of vegetables and then promptly tossed them all in the garbage the look on her face was priceless I just stared in… read more

I'm Having Horrible Neck Pain With Severe Limited Range Of Motion. Any Suggestions For Relief?

A MyFibroTeam Member asked a question 💭
Cleveland, OH

I began getting a sore neck about three weeks ago it has since become unbearable. I'm not currently on any fibro meds and am really struggling with this. The pain is now causing headaches and anxiety issues. It feels as though my neck is swollen. I have been under a ton of stress so I'm not surprised I'm flaring! It's difficult to turn my head! Has anyone else ever experienced this and what did you do to ease the symptoms?

•
View reactions
A MyFibroTeam Member

Dearheart
so very sorry for your pain
I experience similar; worsening, along w/lack of sleep and other disturbance.
My Nbeurolgist referred me to a Neurologist who specializes in Movement… read more

Has Anyone Tried Actipatch For Back Pain

A MyFibroTeam Member asked a question 💭
Whitehaven, UK

Hi I get quite bad back pain and Tramadol doesn't touch it, has anyone tried Actipatch, I saw an advert for the device but not sure if they are worth the money. Thanks for any help

A MyFibroTeam Member

Hi I got the 7 day trial of actipatch and it was brilliant, lower pain went, So I brought the 720 hours from boots it worked great also the 2nd month I brought another one and after 2 weeks the pain… read more

How To Soothe Itching?

A MyFibroTeam Member asked a question 💭
Manchester, UK

For the last month my skin has been so itchy everywhere. I have scratched and am getting scaring now.

I use Aveeno body wash in the shower, and Aveeno moisturiser when I get out.
I'm based in the UK.

Anyone have suggestions of any products or things I could try to get it to calm down?

•
View reactions
A MyFibroTeam Member

Cool showers warmer showers and baths make itching worse, Benedryl, I take Hydroxyzine for anxiety but also helps with itching.

Does Changing Diet Help?

A MyFibroTeam Member asked a question 💭
Happy Valley, OR

Has anyone had significant improvement with changing their diet? I don't have any tummy issues, but changing my diet is the one thing I haven't tried. I've asked a few doctors and they hadn't really seen any huge improvement with their patients.

•
View reactions
A MyFibroTeam Member

Absolutely when you suffer fibromyalgia the diet is something you need to change, no potatoes😒 or legumes, read all the labels is a must and more with the migraine, no soy salsa, no Chocolat, no… read more

Does Anyone Get A Burning Headache But It Is Only On The Centre Of The Top Of Your Head ?

A MyFibroTeam Member asked a question 💭
ontario, Canada

I ask because I have been having a burning sensation on the top of my head which is quite painful. It is as if a hot coal has been placed in that position. Ice pack dulls it a bit but it is not enough relieve. If anyone has the same please let me know what helps but most importantly does it happen normally with fibromyalgia? thanks

•
View reactions
A MyFibroTeam Member

Sometimes if I wash my hair in lukewarm water that helps. I also do an occupational nerve block and that really helped. But all headaches are different. Best to talk to dr.