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Fibromialgia And Restless Legs Are They Related? And Are Severe Rash A Symptom Of Fibromialgia

A MyFibroTeam Member asked a question 💭
Durban, ZA

please help, I suffer from fibro for 25years. I have restless legs , is this related to fibro, it is always starts on the left ankle until I cannot handle the shakes. my 2nd question since January I have terrible rash coming and going. it started on my tummy, then the lower legs, upper arms, face red, swollen and extremely itchy. I have seen numerous docters and specialists blood tests were done but no answer. for the past 2 weeks the rash is back starting on the right breast, then the left… read more

October 10, 2015
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A MyFibroTeam Member

Have you been tested for lupus or shingles? Psoriasis?

As for the RLS, I have read in some journals that they are related, which makes sense, because almost all FM sufferers report sleep disturbances of some kind. There's also a link with FM and sleep apnea. You may want to ask your doctor about a sleep study.

October 10, 2015
A MyFibroTeam Member

Met with GI specialist today regarding IBS. Here is what he told me. IBS, chronic headache , insomnia, fibromyalgia, ,hyperactive bladder, OCD, personality changes are all classified as Hypersympathetic Syndrome. Syndrome causes increases in adrenaline (cholinergic). IBS=abdominal pain mainly in colon. Prescribed Hyosciamine. A little pill to be taken 1-2 tabs every 4 hours as needed for the cramping, gnawing, grating , "electric" pain in lower abdominal/pelvis. Advises following low FODMAP diet. Eliminate Fructose, Lactose, Fructans, Galactans, and Polyols. Need to reduce amount of foods that can ferment in bowels like fruit juices, certain fruits, fructose, honey, lactose like milk from animals, soft cheeses like ricotta, cottage, mascarpone. Galactans like baked beans, chickpeas, kidney beans, lentils. Polyols like apples, apricots, blackberry, nectarines, plums, prune, watermelon, bell pepper, mushroom, sweet corn and all sweetners that end in -ol like sorbitol, mannitol , xylitol.

Avoid stimulating antidepressants like Zoloft and instead use relaxing (anti cholinergic) antidepressants like and cymbalta.

Stop trying to diagnos ourselves. For medical information go to :

www.pubmed.gov

This is a non commercial site. I explained to him that we go to other sites trying to get information because physicians don't give us enough information. We look for alternative medicines in desperation to stop pain and get advice from support groups because we see specialist only 15 minutes at a time every 2-3 months. He said in regards to supplements St John's Wort is only one valid for mood enhancer. SAM-e not proven effective for mood booster. He said "fibro fog " should be called loss of concentration.

After 2 months of loosing work time and floundering around trying to get answers from physicians I finally found one doctor that I feel has a clue to my treatment plan. I will see rheumatologist in a few days. Will post what he says. Hope this helps.

October 10, 2015
A MyFibroTeam Member

I get those rashes too. No one can tell me why. It is so severe I can't stand wearing clothes. I have tried layering Lanocaine and Gold Bond creams with some success - enough that I can finally fall asleep.

October 13, 2015
A MyFibroTeam Member

Have you tried hyoscyamine ? Just started pills given by GI doc. For cramping. It is anti cholinergic/anti spasmodic. Also, last night was the first time I realized what restless leg syndrome was. So weird to have to keep legs moving around to get relief.

October 13, 2015
A MyFibroTeam Member

Yes since I went off Cymbalta my IBS came back I have psoriasis. psoritic arthritis and more pain but less Brain Fog and can think better my personality is better not irritable. I am still looking for more natural ways to treat this because I don't like being doped up and not myself! I know my anxiety and thinking were terrible on the prescribed drugs.

October 11, 2015

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