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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Neurontin

A MyFibroTeam Member asked a question 💭
West Dennis, MA

This drug makes my body all numb.I'm also very tired all the time. I just don't feel right on this drug and have tried to go off it but the withdrawal was so bad, I had to start it again. I hate this!! Why can't I come off it, bc its a nerve drug and my nerves have gone bonkers with the fibro??

July 17, 2017
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A MyFibroTeam Member

I went through months of total hell getting off each of the fibro medications I was on. For me I finally said enough and suffered through ( made fibo look like a picnic) I am now better than I ever was on the medications but it took a long time for my body to recover

July 18, 2017
A MyFibroTeam Member

I'm in that process myself right now. It's miserable. I have discovered that my doctor loves to prescribe Medford EVERYTHING. I'm so over all these medications. I think that the meds have worsened this disease. The worst thing now is the excessive sweating from intolerance to the heat and the fatigue.

July 18, 2017
A MyFibroTeam Member

I was on Gabapenton, I don't take it now. I thought she must have given me something that took it's place. in any case, I had a bad case of shingles that involves nerve pain. that could be when I stopped taking them. Oh that brain fog. sometimes I remember stuff in detail, other times it sucks.

June 30, 2022
A MyFibroTeam Member

I agree!! Medications end up running your life, but when I went off all pharmaceuticals before, as in this time, my body got totally numb all over, chronic motion sickness (not vertigo), chronic chills with fevers, and more. I could barely go out in public unlike now being in withdrawal. This is just a big mess bc I can't find a fibro doctor!! Who believes in this anymore?? They think my issues are more phych than physical!!

July 18, 2017

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