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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Ehlers Danlos Syndrome?

A MyFibroTeam Member asked a question 💭
Lawrence, KS

Does anyone here have Ehlers Danlos Syndrome? I am presently being worked up for a connective tissue disorder, with this disorder being the primary concern.

November 8, 2018
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A MyFibroTeam Member

Yes, I have the hypermobility type which I understand is the only type there is no test for. So, I have extremely tight muscles but very loose joints/ligaments. Makes treatment more of a challenge.

November 8, 2018
A MyFibroTeam Member

I am also getting worked up for connective tissue disorder and muscular myopathies. I dont have this that I know of. Hope you turn out alright and that ur doctors are kind to you!

November 8, 2018

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