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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Find Doctors Who Treat (or At Least Understand) Fibro?

A MyFibroTeam Member asked a question 💭
Rochester, NY

Do you see ones out of pocket or insurance only? Debating and learning how to approach this.

May 2, 2019
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A MyFibroTeam Member

Within my insurance plan, when selecting a doctor, the list shows areas, like geriatric (important to older), heart, etc. that the doctor is more experienced in. I was fortunate that my primary care doc, new to me when my symptoms started, was able to recognize and has been treating me for 3 years. I am blessed with an understanding and patient doc who explains things.

May 2, 2019
A MyFibroTeam Member

I don't know where you are located, but the community mental health agency in my city is extremely understanding and knowledgeable about fibro and me/cfs (my primary diagnosis). If there is a community mental health agency in your area, you could try doing an intake there and see if you can get a referral. You can also point blank ask the intake specialist if they have any case workers who are familiar with chronic pain- you are allowed to screen them as they screen you. Best of luck. A helpful primary care provider is such a crucial resource. I hope everything falls into place for you.

May 4, 2019 (edited)
A MyFibroTeam Member

I also have the best GP so I’ve never had to worry! I do worry what I’m going to do when he retires!

May 4, 2019

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