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Does Anyone Have Visual Symptoms?

A MyFibroTeam Member asked a question 💭
Lincoln, NE

I have trailing and afterimages especially at night. It seems like it’s getting worse. Like when I look from one thing to another a series of pictures of that image follows super quick like when something is a blur from going too fast. I’ve gone to many eye doctors and they just shrug. They think it’s odd and have nothing to say about it. I’m worried about long term. Will it get worse and worse? Does anyone else experience this?

September 25, 2019
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A MyFibroTeam Member

I also experience visual changes but eye doctors are not concerned. Please read the article below, it makes sense. We need to find doctors who are familiar with the problem and try to control symptoms and research fibromyalgia.

Fibromyalgia, the Optic Nerve, and Neurodegeneration

https://www.verywellhealth.com/neurodegeneratio...(Phone number can only be seen by the question and answer creators)

"Blood-Flow Problems
In the study published in 2015, researchers looked at blood flow to the optic nerve and the retina nerve fiber layer . Blood flow, also called perfusion, is hypothesized to be irregular in several regions of the brains of people with fibromyalgia.
Researchers examined and took photographs of the eyes of 118 people with this condition plus 76 healthy people in the control group.
The photos were then analyzed with special software. The researchers concluded that the fibromyalgia eyes did in fact show low perfusion rates in several sectors, but the only significant difference was in certain RNFL (retina nerve fiber layer).
Optic Nerve Thinning
The study published in 2016 built on that research, involving many of the same researchers. This time, they included 116 people with fibromyalgia and 144 in the control group.
They found:
A significant decrease in the retina nerve fiber layer in fibromyalgia compared to controls
A thinning of multiple structures in the eye
Greater optic nerve thinning in those with severe fibromyalgia than in those with a milder case
Greater optic nerve thinning in subgroups without depression than in those with depression"

September 26, 2019
A MyFibroTeam Member

@A MyFibroTeam Member
i have had the same thing as you, for 3 years...
trailing, after image, floaters, visual snow, palinopsia, etc
try to find a neuro oftalmologist, to rule out something else,
but to be honest this symptoms happend to me, and it hasnt gone worse in 3 years.
no longer see after images, palinopsia or trailing
but my visual snow is with me 24/7
i dont really care, i already got used.
soo my advice here is try not to get stressed over this, this shall pass.

September 25, 2019
A MyFibroTeam Member

Does occasional blurriness count? Sometimes I think I have to take out my eyeballs and wash them. :-D

September 26, 2019
A MyFibroTeam Member

I do get some visual weirdness at times. Vision may get a little blurry. At times, it is like someone shines a bright light in my eyes, I get those light tracers.

September 26, 2019
A MyFibroTeam Member

Omgee I get this. It usually precedes a dizzy spell. I get very lightheaded, feel faint, first. Then the image stutter, and if I don’t just stop, and rest, it goes into full blown vertigo. Throwing up, sweating profusely. I have been to the ER twice. One time low potassium, another slightly dehydrated, another low D. They really don’t know why. I have learned that when it first starts, to drink more water, take D, a potassium pill, some magnesium, a multi-vitamin, and rest. Lots of rest.

September 25, 2019

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