Top 10 search results for "i wish i could tell the truth about this illness but i think that a lot of people dont understand" in Q&A. To see all results and access other features, sign up for free.

does anyone else get chest pain or feel like the centre of their chest is bruised when they press on it?? also have like achey muscles around my armpits and had sharp pain in my armpits a few weeks ago!! i've been to the doctors so many times with so many different symptoms over the past 8 months that they just brush me off and tell me there's nothing wrong. had blood tests, paid for a private brain MRI as they wouldn't give me one, all normal. they won't diagnose me but i have all the symptoms… read more

Can I please call on your wealth of experience and knowledge when I ask you what natural supplements do you take? I already take magnesium, vit B & evening primrose but I am thinking more about exploring and trying others. I don't know if this is the best approach to take, but I reckon if anyone can/will give me honesty in their answers, it's all of you. Right now I am open to all suggestions about supplements (I shall be exploring therapies another time, fairy steps). Thank you x

I am literally making myself sick over a Friend's husbamd's 50th birthday party. It is this Saturday at their house which is just up the street. I am not friends with her husband, just her. I used to enjoy going out for coffee either a few times
per month in the evening before I got ill 3 years ago. She can be very pushy and is not understanding of my illness. I have tried to explain numerous times that evenings are not good for
me anymore, but she doesn't get it. If she texts me to ask me… read more

Every single friend and family member has dropped off. I have nobody who understands what I am going through at all so I get a lot of rejection and criticism.

How do people cope when a family member does not understand about the effects that fibromyalgia has on you, to the extent that you are being accused of faking it just to get out of work! When you try to sit down and discuss things you get told to 'shut up' or 'I have pain to and have to get on with it'! (Especially as this family member has been told options to treat pain but refuses treatment!)

I began getting a sore neck about three weeks ago it has since become unbearable. I'm not currently on any fibro meds and am really struggling with this. The pain is now causing headaches and anxiety issues. It feels as though my neck is swollen. I have been under a ton of stress so I'm not surprised I'm flaring! It's difficult to turn my head! Has anyone else ever experienced this and what did you do to ease the symptoms?

Im having a hard time, feeling annoying with the ups and down with fibro. Atm very bad flares last couple of days. I feel like my partner shuts of from it.

I keep looking reading etc for possible solutions, diets, swimming whatever. I get lost in it. But he doesnt seem to understand that i cant stop looking for answers. Even if its just to get a little release.

I feel very alone since im not honest to my friends about how bad it really feels. Because of shame.

Its a lonely journey. So happy… read more

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!