Also known as painful bladder syndrome

I understand completely! I go for a Cystoscopy soon but my Neurologist said he suspects they won’t find anything (which is good) and that it’s a matter of inflammation. I have to be near a bathroom and hope I don’t loose retention someday. I know some people can take a pill to help with leaking. I have Syringomyelia which is probably my cause but it took a different, older doctor I saw as a urgent visit to look at my notes and order the procedure. Of course, now that I see a doctor just by chance who takes things seriously, he’s older and retiring. Tells me it’s worth it to seek out another doctor.

Hi Christine, I'm still waiting to get my tests done! It's only been six months since I notified my doctor. That is so disgusting. I have to provide a list of two hundred symptoms of Fibro, indicating which one's I have, and could you please, please, please let me have the test for 'this'? I'm tired of 'accidents'. I don't feel a thing, I hate the 'diapers', they leak anyways and don't fit well (small victory, I bought Thinx. They're just like padded underwear). Anyways, I knew something was wrong. I'm retaining water even though I show signs of dehydration so I'm told....What???? And when I finally urinate, it's tinkle, tinkle, tinkle. Where is the rest? Oh, I'm retaining water now...where? Anyways, this test is to determine if indeed my bladder is hardening ( pain is just a symptom ). My doctor is so useless. I understand this maybe frustrating to her...oh no, not more blood work....we've already done this soooo many times! You're not going to see it on blood work!!! I need a test done! Well, my last visit, she said she'd like to see me more.....ok, making my supposedly urgent visit...a two month wait! I'm so angry, with all the time she wastes. One visit, when I found out I was allergic to polysporin, she slammed her hands on her desk, said 'I'm done' left the room and didn't come back. What about my problem? Some healing cream please? Nope, gone. I only waited six weeks for that appointment. So, I ended up leaving after a very long wait....untreated. I'm trying to be my own advocate, seeing as I'm not getting the help from the medical community. I'm frustrated, I don't know what to do anymore. Oh, yeah, with this condition there is no treatment or cure. It just progressively gets worse over time, like Fibro. Hope I didn't bumm you out too much. Fibro is so much fun! So many surprises! Always something new! I'm being sarcastic here.
Well, Til Later......Be Well. Take Care. Thea2 😊

Can I please ask what this is?

I have a Prostrate condition with the same symptoms. Was told there is nothing to help. I found things. Amitriptyline helped with pain and sleep. My behind felt strange and made me feel so I’ll I went to bed. After I took 100mg of Amitriptyline I began to shake so I stopped taking the medication. The unpleasant sensation in my behind stopped. Pain just another one on top of many I will never sleep, due to frequency. I have pushed for Botox injections in my bladder. Of course on an eternal waiting list.