Good morning love. When I was initially diagnosed with Fibromyalgia my family was not very supportive. I know that I have always appeared very strong to my family and they did not understand exactly what I was going through. With that being said, if it was one of them, complaining of the daily, agonizing pain and literal exhaustion, I would have taken them at their word and would have done everything possible to help lessen their pain.
I remember staying up after I worked my 12 hour shift, because I also had really bad restless leg syndrome at the time, and my shins and calves would be in so much intense pain in my muscles and bones. I would literally be awake waiting for my husband to get off from work in the morning, just because I needed him to massage my legs to help make the pain go away. I would be exhausted, but unable to sleep due to the pain. It would literally break my heart when he would act as if I was being a nuisance and even started saying that when he gets home from work, he is exhausted and he doesn’t feel like rubbing on my legs…This literally broke my heart as he had to have noticed how much pain I was in and how desperate I was. My teenage kids began to act as if I was intentionally not going to their sporting events when I was unable to get out of the bed. Fortunately in time, with a lot of education and literally watching what I was going through, my husband and kids finally started being more supportive of me. And truth be told when I was unable to work for 3 years and my husband had to make ends meet that really got his attention. He is a lot more supportive knowing how debilitating this disorder can be. Hang in there. Once we figure out those triggers to avoid and speak to our medication regimen the pain and flare-ups do lessen. Praying that you receive the support that you deserve and I hope you have a good day.💕

Over time it will get better

It’s truly heartbreaking that they don’t understand the constant pain. My husband don’t understand at all or maybe he don’t actually want to or care to. Idk but it’s so frustrating. If he is in pain I hear about it and it’s always worse than anything I could imagine. The pain is so bad that I will be crying and he will just ignore it. My hands hurt so bad all the time but yet he wants me to rub his back or neck everyday. An gets mad if I say I can’t or I can only rub him for a little bit. But yet won’t rub on me when I ask him to. To top it off in august I ended up in the hospital having tremors or the nervous system and that just brings more pain, bad spasms, shaking and he wants me to use this hand held massager on his back and feet since it hurts to rub very long. But the vibration from that just about kills me. It also makes the tremors get really bad.

It’s heartbreaking. Then when you have had enough and finally express to them what they are doing hurts, they say “you’re always in pain so why would I ask you how you are everyday?”

I’m thankful for this group.

So sorry to hear that .Adding fuel to the fire .😪