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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "still a little puzzled but i will figure it out" in Q&A. To see all results and access other features, sign up for free.

Menopause And Aging With Fibromyalgia

A MyFibroTeam Member asked a question 💭
Decatur, GA

After living relatively a normal life with FM for 30 years, my disabling flare-up coincided with menopause. I would like to hear from others that had similar experiences. Life was turned upside down for me by mother nature, genetics, and this elusive illness. Still grappling with the drastic change.

Also, I have been told by my physician that how FM affects aging is relatively unknown. Some studies say it ages the body 10-20 years faster - but that is inconclusive. I also know that the… read more

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A MyFibroTeam Member

Thanks for all the great comments. There is so much more to learn about this illness it is good to hear how it has affected others.

Does Anyone's Scalp Get Sore To The Touch Before A Headache Starts?

A MyFibroTeam Member asked a question 💭
Zephyrhills, FL

The crown of my head gets really sore and throbbing. If I take my Topomax before the head ache starts it can block the headache. Is this part of fibro?

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A MyFibroTeam Member

Try Maxalt or Rizatriptain. They really help but you need a prescription. Promethazine is good for nausea which might come visit with the migraines.

I Am Finding It Difficult To Actually Get Diagnosed With Fibromyalgia. How Can I Get A Confirmed Diagnosis?

A MyFibroTeam Member asked a question 💭
Carshalton, UK

I have many symptoms of Fibromyalgia. I have seen my GP and rheumatologist, had various scans but I am finding it very difficult to get an actual diagnosis. My tests and scans confirm that I do not have RA, but mild osteoporosis in a few joints.

A MyFibroTeam Member

Thank you to you all for your comments. My rheumatologist has now diagnosed fibromyalgia along with osteo arthritis x

How Do You Keep Calm About New Aches And Pains? I'm Always Worrying About Cancer.

A MyFibroTeam Member asked a question 💭
Lincoln, NE

My mind immediately jumps to leukemia or lymphoma because deep bone pain is a symptom and I get a deep ache in my arms and legs often. Then it just gets worse bc my anxiety revs up.

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A MyFibroTeam Member

Thank you! This group is so nice for people like us- I feel like if I say any of this stuff to my 'healthy' friends they will think I am crazy! I have gone to a therapist and it helps some. You… read more

Paifully Cold Feet

A MyFibroTeam Member asked a question 💭
Vancouver, BC

I have to warm up my feet few times a day with heat pad, they get painfully cold. Does anyone else experience the same?

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A MyFibroTeam Member

Yes yes I get the cold, numb, painful feet constantly. I get in bed under a heating blanket to warm my feet. It is miserable. I rub them with Neuragen, it helps, but expensive. I can’t keep it on… read more

Cold Sores

A MyFibroTeam Member asked a question 💭
New Jersey, NJ

Several weeks ago I was put on Lamictal for my seizure activity. I broke out with a bunch of cold sores. My daughter was sick and I lost allot of sleep so I thought it was just from being run down.

Then I had white sores all over my tongue and throat. Felt feverish. No fever.

Broke out in a purple rash on my back. Stopped Lamictal immediately. I am nurse ( non active atm due to health) but it's a side effect of Lamictal. Called my neuro confirmed stopping.

Anyway since then. I keep feeling… read more

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A MyFibroTeam Member

I think the last post was very good advice.

Help Please Neurologist Appointment

A MyFibroTeam Member asked a question 💭
West Fargo, ND

Help please. I need advice. I've been referred to a neurologist for the possibility of ALS or MS and couldn't get in until the end of January. With comments from the neurosurgeon I begged my way in to see the neurologist tomorrow. I'm in the process of appealing my short term disability denial and when I told my husband tonight how nervous I am about the neurologist appointment tomorrow he was more concerned with meeting with my credit union regarding my credit card since I currently have no… read more

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A MyFibroTeam Member

Probably if you check yourself early , you can make a good comeback. Don’t wait your health come first. God bless you.

Hi, Has Anyone Tried Prolozone Injections To Help With Areas Of Chronic Muscle Tightness?

A MyFibroTeam Member asked a question 💭
Happy Valley, OR
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A MyFibroTeam Member

Never heard of it

Thera Cane

A MyFibroTeam Member asked a question 💭
Michigan, MI

Has anyone heard of or used a Thera Cane before? I went to physical therapy for the first time this morning, and my PT let me try one out. It seems kind of effective. Just wondering if anyone else had experience to share?

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A MyFibroTeam Member

Thanks for all the input. I think I’ll order one a give it a shot!

Has Anyone Had Ketamine Nasal Spray?

A MyFibroTeam Member asked a question 💭
Richmond, VA
Treatments for Fibromyalgia Read Article...
A MyFibroTeam Member

My naturopath told me it helps some of her patients with Fibro, and for migraines. I am interested in learning more.