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Unsympathetic Peers

A MyFibroTeam Member asked a question 💭
Oak Park, CA

Anyone else here absolutely fed up with people's responses to your chronic symptoms? Responding with things like: "Why can't you just ignore it?" "I get sick too." "Why don't you try this...?" "It is all in your head." Nothing is more disarming, or infuriating to me.

Rant over.

February 27, 2019
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A MyFibroTeam Member

We have chronic pain and CFS besides fibromyalgia. Why is so hard to our family to understand. .. They see a war in tv and they are emphatic, but they see us struggling, fighting everyday and they blame us and do not feel empathy at all.
Theres something wrong with them, no with us.

February 11, 2020
A MyFibroTeam Member

@A MyFibroTeam Member
@angeliou
You mentioned people say you don't
have cancer. Well, I have had breast cancer twice. They were no more supportive then. I was supposed 2 b glad it was not worse.
Happily 4 me, my husband is wonderfully supportive. Also, I learned to b grateful for the one true friend who will never let me down. That is Jesus, my Lord. He always understands and gives me peace to keep going.
Hugs to all.
Lee

June 15, 2019 (edited)
A MyFibroTeam Member

Yes. The one I dislike most is, "You look so good today, you must be feeling better." What chance do I have to tell them the struggle I had getting there after that? I try hard to ask how are you to someone first. Often they will start talking & and forget about asking you.

March 28, 2019 (edited)
A MyFibroTeam Member

This upsets me beyond belief! The first thing I get is "that is a women's issue, are you a woman?". Ignorance is the most common reason we have this problem to begin with. Each and everyone of us has been in pain! Your "10" might be somebody else's "5". But it is still PAIN.....
I know about other people who have Cancer, 2 days before our Daughters wedding in January this year. My wife and I found, not a bump but a bag of marbles on her left breast. (It was not there just two days ago, just for all those who are going to say she should have been checking) This was also not her first bout, 7 years ago very small on the other!!.
SORRY SO LONG BUT REAL UPSET!
We went through the process of getting the cancer removed from my wife's body. AND YES SHE WAS IN PAIN.
At times it was like who feels the best, you ok, you get us food.

So to end this long story, all of us are in pain and we know that or you wouldn't be on this site!

We have to learn how to teach other that yes we know people have worse pain than we do, but but please do not discount us as " second class or not as much pain" as we all know pain is subjective to each person.

Prayers and hugs to all on our site here, we all need them!

October 2, 2019
A MyFibroTeam Member

I definitely understand your pain.....I am tired of people comparing this to things like "Well at least you don't have cancer" or things of that nature. I'm well aware of people in worst off situations, but it is not like this is a walk in the park either. I get it!!!!

June 1, 2019

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