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Obsession

A MyFibroTeam Member asked a question 💭
Lafayette, TN

Do you ever feel like your Obsess over you health or pain?? Like it consumes you?? I don't even remember when I didn't feel pain, as even have had problems at least 20 years ago.. I just want to push past always thinking about it!
I'm open for suggestions.

November 6, 2023 (edited)
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A MyFibroTeam Member

Not anymore! I did until 2018. I read an article by another chronic migrainure who stated she "embraced her migraines and walked with them as a friend". I thought she was crazy. For me, migraines are my worst pain. Worse than fibro, worse than arthritis that is all over my body, even worse than the pain of my insides abscessing from an ecoli infection that almost killed me. But her reasoning made sense the more I thought about it. She said migraines made her change her lifestyle, made her focus on her own needs, to eat healthier, go to bed on time, live a low stress life, so she quit hating her migraines, and decided it was actually a good thing so she was thankful for them. I chewed on that awhile, wondering how does one be thankful for pain? I thought of Job and realized that all God wants from us is to be grateful for what He has given us. So I set my mind to trying to learn gratitude. Then one day my dog was doing his crazy dance over my hubby coming home from work, so I joined him. Then the next day I was drinking hot cinnamon tea and was overwhelmed with the wonderful scent and flavor, and it hit me... finding joy in little everyday things was the path to gratitude. So I started looking for Joy Shots everyday, all day long. Anything that makes me smile qualifies: clouds, sunrises, kids, animals, birds, trees, kind people, anything. This changed my attitude about life. Hubby will tell you it's been a huge blessing to him too. So I live in pain. So what! Lots of people do...and many have it worse than me! I don't have cancer, that's a huge one to be grateful for!! So rather than focus on how I feel, now I focus on what I can do in a day. This attitude helps make cleaning more enjoyable too! It takes practice, but it works!

November 6, 2023
A MyFibroTeam Member

Obsess no, stay informed yes. With my new DX for CLL, I have been researching as I did for fibromyalgia,as I did for my dad's cancer. Do I worry day to day,no. I accept the condition and give it to God. When I wake up, I assess what hurts and what I can do to help it. Most of the time it's just get up and move. Some pain goes away and some gets pills,heat pad, or ice. I'm more analytical. Then I distract myself. Crafts, crossword,read, cook, etc. I think that it's a process of understanding what's wrong and what you physically can do. The longer you have it, the better you are at handling it.

November 6, 2023
A MyFibroTeam Member

I always remind myself that there are many people worse off than me and many that would say I'll swap you

November 7, 2023
A MyFibroTeam Member

@A MyFibroTeam Member, Yes, for me it's called the Squeaky Wheel Syndrome. It's like today when I went to my pain doctor for my lumbar RFA, they asked my pain level like usual. Well, 9 times out of 10, my daily migraine is ten times louder than every other pain, so it's hard to rate anything else. But for this one time the reason I was there "out-squeaked" my head! See, just last month I received new inserts that the podiatrist ordered me to get which added almost 1/2 inch to my short leg, thus throwing my SI joints into horrible spasms and locking my hip up. My PT questioned me on the schedule I was given to adjust to my new inserts and was shocked to hear they told me to add an hour a day. Way too fast, she said. So she's reduced me back down and gave new new instructions. But I'm still currently locked up until she can get the muscles to release. So for the first time my pain I was at the pain clinic to address actually got be the Squeaky Wheel that I recognized. That's rare for me. BTW, I know I'm still numb from my procedure, but it sure feels like Doc hit the mark on this one! I was able to get out of the recliner by myself just now!!

November 20, 2023 (edited)
A MyFibroTeam Member

In answer of the question what do I do instead of thinking about it.. I have discovered painting. Turns out I’m pretty good at it but even if I weren’t it takes my mind off of the pain. I look forward to it every day. Sure, there’ve been times when I’m hurting so much that all I do is sit and stare. But for the most part, those are few and far between. Because I am very very excited to play with all of the colors, and the forms, and the creations. It’s very enjoyable.
I watch YouTube because I have no formal training and that’s a whole world in itself that you can become involved in.
I wish you a hobby. You can find that you will look forward to doing every day. (Took me 50 some odd years to find this one.)

November 8, 2023

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