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Is There A List On What Research Is Being Carried Out On Fibromyalgia, CFS And Whether We Can Help In Any Way. Lobbying For Funding Etc.
As I have had it for over 27 years, I have put together info and interviews I have done on it, including the leading Doctor on Fibro here in Canada. https://selfdiscoverywisdom.com/2019/07/29/join...… read more
Has Anyone Tried Oxygen Chamber Therapy And Did It Help ?
The tube behind the ears is called the Eustachian tube, also known as the auditory tube or pharyngotympanic tube. It is made of bone and cartilage and connects the middle ear to the back of the throat… read more
Does Any One Also Have An Additional Diagnosis Of POTS??
I’m so sorry. My kiddo was just diagnosed with POTS. But mama has a gutt feeling that something else is going on at the same time because his immune system is horse poop and his symptoms from any… read more
Brain Fog! I Need A Description Of When This Would Happen. Is It Only During A Flare Or Anytime Because You Have Fibro?
Brain Fog is ongoing. And we have to do some things to make our life better as we have this. As said, we need to make lists so we have encouragement to make ourselves seem better, We can do this!
Hey My Fellow Fibro Buddies .I Have A Question ,what Time Normally Everyone In This Community Goes To Sleep .I Don't Sleep Till 2am
That depends on who you are. Sometimes between 2:00 and 4:00. 5:00 6:00 a.m. Go to sleep. Sleep till 4:00 in the afternoon sometimes. Then back down in bed again by 8:00 or 9:00. Hopefully to try and… read more
Has Anyone Heard Of Or Got Polymyalgia Rheumatica? GP Thinks I May Have This Alongside Fibro?
I have a friend with PMR. Steroids have been helpful for her.
Breathing Issues
Tight feeling in the chest or breathing problems can't explain 🤔 basically rubbed vapour rub on chest and that seems to have calmed it 🤔
Mine used 2 feel like a heaviness. We get odd feelings with fibromyalgia , I find it sad so many people have got fibromyalgia .
What Daily Or More Or Less Frequent Services Do You Believe You Need To Help You With Your Fibromyalgia Symptoms?
1. Clued up GP /Dentist
2. An advocate 👆 to come with me to medical appointments.
3. Clued up body therapist
4. Emotional Health coach
5.Cleaner
6.Daily living tasks helper
7.Garden maintenance
8. Meal prepper.
9.Volunteer Transport.
10. Fibromyalgia support advocates that regularly phone you to see how you are and what you need.
Am I asking too much? 🤔 🙂
Linnie 💗
Same here. Today, little accomplished, it's been a painful day, esp my arm. My accomplishments...washed two bath mats, warmed up leftovers, fed the doggies.🙄
Yes, I could have used some help… read more
Does Fibro Go In To Remission?
I think it did when I was expecting I didn't feel that bad at all . Then it came back when I had my baby
Does Any Body Go To Pain Management For Fibromyalgia My Pain As Gotten So Bad Now I Can Just About Walk. And A Doctor Suggested It Thanks.
Yes I go for that and I have had 2 back operations and 7 joint operations. I am always in some degree of pain. I am on Cymbalta,Norco,Bupropion,Gabapentin and that still doesn’t kill it.
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