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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Electrolytes

By A MyFibroTeam Member 33 answers

I Don't Understand When Ppl Say They're Having A Flare. Are Yall Not In Constant Pain Like I Am? I'm In Pain All The Time!

By A MyFibroTeam Member 57 answers

Pet Pictures!!! Needed Asap!!! Do Not Make Batgirl Flare Up Again. Pets Are The Medicine Needed. 😉

By A MyFibroTeam Member 163 answers

What Daily Or More Or Less Frequent Services Do You Believe You Need To Help You With Your Fibromyalgia Symptoms?

By A MyFibroTeam Member 60 answers
22798 questions

Smelling Gas ... How Do I Know If Its Real Or Just A Phantom Smell ?

A MyFibroTeam Member asked a question 💭
England uk
A MyFibroTeam Member

I smell gasoline too.

June 3

Do People Ever Comment To You That Fibro Is FAKE? That You Make It Up In Your Mind? It Misses Me Off And I'd Demeaning

A MyFibroTeam Member asked a question 💭
Portland, ME
A MyFibroTeam Member

Some people I know tell me they have fibro but it’s not disabling them because they continue to work full time and still do there hobbies, that irks me . Because it’s disabled me my in bed most of my… read more

June 4

Dose Anyone Else Get Pain In There Ribs Both Sides But Mostly In Right But It Happens Both Sides If I Have Been Doing More

A MyFibroTeam Member asked a question 💭
Glasgow, UK
A MyFibroTeam Member

You’re welcome!😍

June 3

I Have One Knee That Gets Warm To The Touch. Anyone Else Get These Random Hot Spots?

A MyFibroTeam Member asked a question 💭
Taft, CA
A MyFibroTeam Member

Usually arthritis when it feels warm!

June 1

Several Fibro Warriors Use Yoga And/or Meditation. Any Advice On These? Difficult For Me, So Far.

A MyFibroTeam Member asked a question 💭
Kentucky
A MyFibroTeam Member

What a coincidence! I just received this from my Sleep Disorder group. It's an article on "box breathing". I've never heard of this before.

https://insomnia.sleep-disorders.net/living/box...

June 26

Burning Sensation 🤨

A MyFibroTeam Member asked a question 💭
Rugby Warwickshire

Erm this is new to me I just woke up feeling like I had put deep heat under my boobs ? I haven't even put anything under then so I'm guessing this is what they call the burning sensation? Gosh it is weird

A MyFibroTeam Member

Having a really bad flare all week end tears and pain so bad I think I just can't take it. Evelyn

June 9

Feeling Cold But Not Cold To The Touch.

A MyFibroTeam Member asked a question 💭
Aberystwyth, UK

Does anyone struggle with feeling cold but they're not actually cold to the touch?

I'm struggling to sleep because my legs feel cold but when I touch my legs they're warm. But my brain can't quite get the message. I was cold, when I first got into bed, and then i warmed up, well, from the waist up I did.

I went downstairs and now I'm Back in bed and even now they feel wrong, one is too warm but also still cold?

My legs are my main problem area and I struggle a lot with the cold but I never… read more

A MyFibroTeam Member

I am constantly internally freezing cold. I spoke to my gp last year and had blood done and they were fine, but after speaking again this week and it still being a problem have more blood next week. I… read more

May 31

Has Anyone Else Been Diagnosed With Chronic Kidney Disease From The Pain Medications They Take?

A MyFibroTeam Member asked a question 💭
La Crosse, WI

When I was a teenager and the pain started getting too intense to handle without taking anything, I started taking a lot of ibuprofen throughout the day. As in, 9-12 pills a day, everyday, for years. My kidneys were rough every time they've been tested in the past few years, and last year they got so bad my doctor had to refer me to a nephrologist who diagnosed me with Stage 2 CKD. She was confused though, because I'm not diabetic and I have low blood pressure, so how did I end up with such bad… read more

A MyFibroTeam Member

I have a history of thyroiditis, so I get my thyroid checked a couple times a year now to make sure it hasn't come back. So far since the first time it happened, it happened since.

May 31

Fibromyalgia And Anxiety

A MyFibroTeam Member asked a question 💭
Rugby Warwickshire

Why does fibro make the anxiety flare up I hate it I'm trying to accept my flare up and then I get the evil anxiety spring up 😣I'm so glad I'm on sertraline though because my mental health isn't half as bad as it was back before I was diagnosed with fibro I honestly believed something was wrong with me but then I was finally diagnosed with fibro. Occasionally now I still get that fear but I take breath and think no it's fibromyalgia I must accept this

A MyFibroTeam Member

No you have dyslexia Margaret.

June 1

How Do You Handle Chronic Fatigue?

A MyFibroTeam Member asked a question 💭
Houston, TX

If I’m working I can push through the fatigue fairly okay. I’m a dog groomer so it may be the fast pace environment that makes it possible to push through. As soon as I’m off the clock, on a day off, or anywhere else I’m persistently EXHAUSTED. To where I’m physically fighting the urge to sleep or even the act of it. My doctor is referring me to a sleep study but I need something in the mean time to help.
How do you cope with fatigue at home?

A MyFibroTeam Member

You may have sleep apnea. You don't have to wait for a sleep study. The places that sell CPAP machines will give you a monitor to wear overnight to test you. The first time I was tested I didn't… read more

May 29
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